目的 系统综述与评价目前国内常用的终末期肾病(end-stage renal disease，ESRD)患者生存质量量表，为临床开展生存质量评价及研究提供参考。 方法 通过中国知网检索2010年以来的国内相关文献，分析各生存质量量表的特性及文献应用现状。 结果 常用的ESRD患者生存质量量表有6种，其中健康调查简表(the 36-item short form health survey，SF-36)和肾脏病生存质量简表(kidney disease quality of life-short form，KDQOL-SF)应用最为广泛。SF-36是普适性量表，具有短小、灵活、测评时间短的特点，应用比例达63.9%，但缺乏与肾脏病相关的生存质量评价；KDQOL-SF作为特异性量表，更针对肾脏病、透析患者，但测评条目79个，测评所需时间较长。 结论 开展ESRD患者的生存质量评价研究时，建议根据研究目的、样本量以及患者依从性等综合选择量表。
Objective The currently used scales for the assessment of quality of life in end-stage renal disease (ESRD) patients are systematically reviewed and evaluated, so as to provide references for clinical studies of quality of life in these patients. Methods We searched for the scales of quality of life for ESRD patients published in Chinese literature in the CNKI database since 2010. The characteristics and application status of these scales were then assessed. Results There are 6 quality of life scales for ESRD patients, in which the 36-item short form health survey (SF-36) and the kidney disease quality of life-short form (KDQOL-SF) are widely used. SF-36 is a universal scale with the advantages of smaller size, flexible, and short evaluation time, and its application rate is 63.9%. However, SF-36 lacks the evaluation of kidney disease related quality of life. KDQOL-SF is a specific scale for kidney disease and dialysis patients, but KDQOL-SF has 79 items and takes longer examination time. Conclusion The scale for study of the quality of life in ESRD patients should be selected based on the purpose of the study, the sample size, and the compliance degree of the patients.
[1]Zhou M, Wang H, Zeng X, et al.Mortality, morbidity, and risk factors in China and its provinces, 1990-2017: a systematic analysis for the Global Burden of Disease Study 2017[J].The Lancet, 2019, 396(10243):394-394
[2]Maurizio B, Gilda P, Anna P, et al.Treating symptoms to improve the quality of life in patients on chronic hemodialysis[J].Int Urol Nephrol, 2019, 51(5):885-887
[3]张杰兰, 赖先婷, 柯燕, 等.中老年维持性血液透析患者症状困扰与生命质量的调查分析[J].中国血液净化, 2022, 21(04):296-299
[4]Ma S J, Wang W J, Tang M, et al.Mental health status and quality of life in patients with end-stage renal disease undergoing maintenance hemodialysis[J].Annals of Palliative Medicine, 2021, 10(6):6112-6121
[5]赵慧萍, 王梅.年国际腹膜透析学会《处方高质量、目标为导向的腹膜透析》指南推荐解读[J].中国血液净化, 2020, 19(12):793-797
[6]Fleishman TT, Dreiher J, Shvartzman P.Patient-reported outcomes in maintenance hemodialysis: a cross-sectional,multicenter study[J].Qual Life Res, 2020, 29(9):2345-2354
[7]Sethi S, Menon A, Dhooria H, et al.Evaluation of health-related quality of life in adult patients on hemodialysis[J].International Journal of Applied and Basic Medical Research, 2021, 11(4):221-225
[8]Pretty N.MbejeFactors affecting the quality of life for patients with end-stage renal disease on dialysis in KwaZulu-Natal province,South Africa: A descriptive survey[J].Health SA Gesondheid, 2022, 27(0):e1-e8
[9]Luo N, Liu G, Li M, et al.Estimating an EQ-5D-5L Value Set for China[J].Value in Health, 2017, 20(4):662-669
[10]夏静, 吴念韦, 马天佩, 等.基于西南地区居民--量表信效度评价[J].四川大学学报：医学版, 2020, 51(5):691-694
[11]罗纪聪, 赵景宏, 成琼, 等.健康生命量表应用于自动化腹膜透析和持续非卧床腹膜透析患者生命质量评价的信效度研究[J].中国血液净化, 2020, 19(07):445-448
[12]JIANRONG ZHAO, QIGE QI, SHANSHAN XU, et al.Combined aerobic resistance exercise improves dialysis adequacy and quality of life in patients on maintenance hemodialysis[J].Clinical nephrology, 2020, 93(6):275-282
[13]Antari G, Widyanthari D M .Symptom burden and health-related quality of life in hemodialysis patients[J].Enfermería Clínica, 2020, 30(7):117-120
[14]Luiz, Fernando, Catto, et al.Patient's response to a simple question on recovery after hemodialysis session strongly associated with scores of comprehensive tools for quality of life and depression symptoms[J].Quality of life research: An international journal of quality of life aspects of treatment, care and rehabilitation, 2014, 23(8):2247-2256
[15]梁月红, 杨俊伟.维持性透析患者生存质量评估及研究进展[J].医学研究杂志, 2020, 49(5):16-19
[16]Hays RD, Kallich JD, Mpaes DL, et al.Kidney disease quality of life short form( KDQOL-SFTM), version 1.3: a manual for use and scoring[M]. Santa Monic: Rand, 1995:7994.
[17]Peipert, John, D, et al.Psychometric Properties of the Kidney Disease Quality of Life 36-Item Short-Form Survey (KDQOL-36) in the United States[J].American Journal of Kidney Diseases the Official Journal of the National Kidney Foundation, 2018, 71(4):461-468
[18]Antari G, Widyanthari DM.Symptom burden and healthrelated quality of life in hemodia-lysis patients[J].Enfermería Clínica, 2020, 30(7):117-120
[19]Ibrahim N, Chu SY, Siau CS, et al.The effects of psychosocial and economic factors on the quality of life of patients with end-stage renal disease and their caregivers in Klang Valley, Malaysia: protocol for a mixed-methods study[J].BMJ Open, 2022, 12(6):e059305-e059305
[20]Iyasere OU, Brown EA, Johansson L, et al.Quality of Life and Physical Function in Older Patients on Dialysis: A Comparison of Assisted Peritoneal Dialysis with Hemodialysis[J].Clinical journal of the American Society of Nephrology: CJASN , 2016, 11(3):423-430
[21]Fan L, Yang X, Chen Q, et al.Burden of kidney disease among patients with peritoneal dialysis versus conventional in-centre haemodialysis: A randomised, non-inferiority trial[J].Peritoneal Dialysis International:Journal of the International Society for Peritoneal Dialysis, 2022, 42(3):246-258
[22]Brown EA, Zhao J, McCullough K, et al.Burden of Kidney Disease, Health-Related Quality of Life, and Employment Among Patients Receiving Peritoneal Dialysis and In-Center Hemodialysis: Findings From the DOPPS Program[J].Am J Kidney Dis, 2021, 78(4):489-500
